EMPIRE STATE LYME DISEASE ASSOCIATION

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NYS Doctors are Protected 

OPMC Reform

Signed by Gov. Paterson 2008

 

Empire State Lyme Informational Brochures (free)-also, you can ask for a customized version for your group

 

Tick- Info Plus (Download 97 page Tick Management free)

 

Lyme and Tick-

Borne Disease Info

· The Beginning

· Rashes

· Early Detection 

· Testing

· Symptoms

· Additional Symptoms

· Co-infections

· Late stage Infection

· Antibiotics

· Treatment

· Herxheimer Reaction

· Mechanism of Action

· Survival Tactics

· The Bad News 

· Conclusion

· Good News

· Prevention

· Alternative Treatments

· Lyme Disease Politics

· Disclaimer

 

**PREVENTION**

 

Lyme tests are not accurate-2005 John Hopkins study

 

Articles on the Persistence and Virulence of Lyme

by Miklossy, Luft, Barthold,  others

 

*Support Group Meetings*

 

Empire State Lyme en Español

 

Michele Moynihan's Presentation "Lyme Disease: Be Lyme Wise* is a Great Educational Presentation for School Children 

 

LYME BOOKS

and Books on 
Tick-Borne Diseases
plus

FREE: THE THIRD

GREAT PLAGUE

 

**Empire State Lyme Disease Association ~ Our Yahoo Discussion Group**

 

Children

Autism and Lyme Disease

Children

LYME & Pregnancy by John Drulle, MD

 

Misdiagnosis

Alzheimer's and Lyme Disease

 

LYME BORRELIOSIS and MULTIPLE SCLEROSIS

 

Worm Parasites, FILARIASIS Nematodes in ticks?

Nematode Spirochete Farmers

Nematode-Bacteria- Symbiosis

10 Questions For Scientists

 

Heart Disease & Lyme Disease & Lyme Carditis
 

Antibiotic

Resistance

 

ILADS TIPS TO AVOID CHRONIC LYME DISEASE

 

**US Senator Chuck Schumer, NY, on the
Board of Empire State 
Lyme Disease Association
**

 

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Freedom of Information Law Requests

Federal Health Reform

Implementation Timeline

 

Special Thanks

 

In Memory

of Keith Romaine 

 

 
 
 

** 2012 Event Reminders **

IT'S SPRING AND TICKS ARE MORE ACTIVE NOW

Servicing from Moriches to Montauk - Wading River to

Orient Point & Shelter Is.  

http://tickcontrol.com

631-287-9700

324- 9700 or 765-9700

Worth viewing - A teenager discusses her Lyme disease

This site is worth a VISIT WWW.PEEROBSERVATIONSMAGAZINE.COM

Dr Warren Levin Re-Opens NY Practice

EMPIRE STATE LYME DISEASE ASSOCIATION INC

is affiliated with the 

LYME DISEASE UNITED COALITION (The LDUC)

LymeInfo@lduc.org    www.lduc.org  PO Box 86 Story City, IA 50248

Judith Weeg, President   Ph 515-432-3628  Toll free 800-311-7518 Fx  888-746-3810

From the LDUC: “Whoever destroys a soul, it is considered as if he destroyed an entire world.
And, whoever saves a life, it is considered as if he saved an entire world.”

 
MAY IS LYME AWARENESS MONTH
Annual Benefit Gala
Wednesday, May 16, 2012,
Honoring Staci Grodin Co-Founder & President, Turn the Corner Foundation
David Roth, Managing Director, Blackstone Real Estate Advisors & Founder, 

Tick-Borne Disease Initiative
6:30 to 10:00 PM (Program begins promptly at 7:45) 
229 West 43rd Street, 11th Floor New York, NY 10036
TBDA hopes that you will join them. For more info call 212.687.3924

email wkleinman@wkplanning.com, url: www.turnthecorner.org


A Forum on Tick-Borne Diseases - What's NEXT?

May 21, 2012 from 8:30 am to 6:00 pm
Zankel Music Center, Skidmore College in Saratoga Springs, New York


*Support Meetings are free and open to the public*

We provide information on topics of Lyme and tick-borne diseases for educational purposes only and we address other areas of concern to participants.  Unless otherwise specified, we hold meetings in an open format where this format encourages participants to raise questions, exchange ideas and experiences, make connections, and locate resources, drawing from the extensive experience of the other support group members. Anyone with questions about Lyme and tick borne disease is welcome to attend.

Also see: Support Group Meetings and Download printable flyers


RIDGE LYME SUPPORT GROUP
EMPIRE STATE LYME DISEASE ASSOCIATION INC
DATE: Meets EACH Second Thursday of the month  TIME: 1 - 2:30 pm
WHERE: Ridge Civic Center, Panamoka Trail, Lake Panamoka, Ridge, NY Going west on Rt. 25, you make a right onto Panamoka Trail; go 3 blocks and the Civic Center is on the right -  you will see the firehouse across the street.  Heading east on Rt. 25, go past the William Floyd Parkway intersection and continue east until you see "Panamoka Trail road sign on the left. Go left, head three blocks and the Civic Center is on the right.

Open Forum plus ongoing discussion:  HAVE YOU BEEN MISDIAGNOSED?

Lyme disease mimics other diseases; people are misdiagnosed with Fibromyalgia, Chronic Fatigue, ALS, MS, Lupus, Parkinson’s, Alzheimer’s, and later, will find that the 'culprit' is Lyme disease. We will also discuss the AUTISM-LYME CONNECTION Participants are encouragedAll with questions about Lyme & tick-borne disease are welcome to attend!
Info 631- 929-6142 or Cathy at chahn720@verizon.net


MIDDLE ISLAND LYME SUPPORT
brought to you by

www.liHeartandHealth.com and EMPIRE STATE LYME DISEASE ASSOCIATION INC

Wednesday May 23rd at 7 to 9 pm
281 Middle Country Rd,
Middle Island, NY11953-2505 
If you would like to be added to the mailing list to be notified of future events, or for further information, 631-878-6657 or EmpireStateLyme@aol.com


Capital Region Chapter
EMPIRE STATE LYME DISEASE ASSOCIATION INC
Meetings usually held at the
At the Guilderland Public Library
2228 Western Avenue, Guilderland, NY
Lyme disease is a bacterial infection principally transmitted through the bite of ticks. Ticks also can transmit a number of other serious diseases, such as Babesia, Bartonella, Anaplasma, and Ehrlichia; can attack any of the body's systems; can manifest in many different forms in different victims, including severely affecting the musculoskeletal system, creating severe pains in the joints, disrupting sleep, disturbing the digestive system, and many more. Frequently misdiagnosed and widely misunderstood, Lyme disease, in particular, has reached epidemic levels in the eastern part of New York State, including sections of the Capital Region. Anyone with questions about Lyme disease is welcome to attend. The meeting is free and open to the public. To be added to the mailing list to be notified of future events, or for further information, contact felicite44@aol.com


The Fingerlakes Region, Rochester Lyme Disease Support Group

Empire State Lyme Disease Association, Inc.

Support Meetings on the Third Sunday of Every Month From 2:00 to 4:00 PM 

At the Farmington Town Hall ~  1000 County Road 8, Farmington NY 14425

Email Fingerlakeslymegroup@yahoo.com or corkyt@rochester.rr.com Ph 585-924-3558 


For Riverhead, Manorville, Huntington, North Shore, Great Neck Chapters meetings and events will be announced.  For info, Ph 631-878-6657 or Email NorthShoreLyme@gmail.com  or EmpireStateLyme@aol.com 


Central New York Chapter

EMPIRE STATE LYME DISEASE ASSOCIATION INC

Meetings are held at the Onondaga Free Library Onondaga Hill, NY.  Please attend if you are interested in sharing and learning about Lyme and associated tick-borne diseases. More information call 315-200-6541 or email LymeCNY@gmail.com 


Schedule for CNYLS, the Lyme group from Chittenango CNYLS

Monthly meetings are held at Sullivan Free Library, Chittenango.  

CNYLS presents May 17th Thursday 7 PM at location to be announced.

LLMD Stephen Bock and IGeneX Inc. representative Robert Giguere.

CNYLS, founded 2011, serves as a resource, offering information and guidance for issues of Lyme and other tick-borne diseases. CNYLS provides a place for its members to share feelings and concerns with others suffering from effects of the disease. CNYLS also offers a faith-based perspective in coping with the complexities of living with Lyme. Contact CNYLS at CNYlyme@gmail.com, or phone 315-687-6540.


ONEONTA LYME SUPPORT

DATE & TIME: To be announced

Meetings are conducted in the Education Wing, Classroom C of the FoxCare Center 1 Foxcare Road (State Route 7) in Oneonta. Note: Due to warm winter weather, heavier infestations of Lyme carrying ticks are expected and utmost care should be taken to avoid them. More info - call Bob Tuthill 607-278-4049 or email btut42@yahoo.com 


VISION FOR LYME ENCOURAGEMENT GROUP  

 Support Group Meeting 2nd Wed of every month

6:30 at Bethlehem Community Church 201 Elm Avenue, Delmar 

We'll try to start promptly at 6:30 & end promptly at 7:45 

This is a non-denominational faith-based group to listen and support each other’s spirituality as we all strive to heal. This group will begin and end in prayer. 


Adirondack Lyme Disease Foundation
Support group meetings are scheduled to be held

at the Saratoga Springs Public Library, 49 Henry Street,
Saratoga Springs, NY in the Susman room, located on the lower level, from 7-8:30 PM

For more information, please email lmcallister@nycap.rr.com 


A Hope 4 Lyme 5th Annual Lyme Walk – for those who can’t
Saturday, May 12, 2012 (Please note new day!)
Chapel Park
83 Personius Rd
Pine City, NY
Chapel Park is a dog friendly park and this year we are encouraging people to come with their sociable dogs. We have made changes this year to make the day more exciting. 

Support Meetings usually held at
Big Flats Community Center (Room C) 476 Maple Street Big Flats, NY 14814
This is free and open to anyone suffering from Lyme or other tick-borne diseases, caregivers, children, friends & family who have questions and-or are looking for answers.

Linda Wales Director-Treasurer
PO Box 1003 Elmira, NY 14902-1003
www.ahope4lyme.org


Ticks Can Be Active All Year Round - Caution Urged

The Empire State Lyme Disease Association urges everyone to be on guard throughout the year. Ticks may be active if the temperature is warm, even in the middle of the winter. The ticks can even become more active in the cooler and damper weather, and can be found in leaves, on trees, and in tall grasses or other leafy areas. ESLDA recommends using caution when moving firewood, walking in the woods or fields, and be especially vigilant in checking children who have been playing outdoors. The use of a commercial tick repellent, wearing light colored clothing, and avoiding leafy or tall grassy areas is recommended for out-door activities. Even if pets are vaccinated, they can bring ticks into the house. Check yourself, check your family members, and check your pets for ticks. 

SEE PREVENTION

Tick-borne diseases, rampant in New York, can be highly complex, and difficult to diagnose and treat. For instance, blood tests for Lyme can return false negative results, leading doctors and patients down long, expensive, and incorrect diagnostic paths. 

SEE TESTING IS INACCURATE

We need more doctors to have extensive experience in the diagnosis and treatment of tick-borne diseases, in all stages and especially advanced stages. New York has a number of outstanding doctors who are helping many patients afflicted with Lyme and other tick-borne diseases. If diagnosed and treated early, patients can recover. If left undiagnosed, or improperly or insufficiently treated, Lyme and tick-borne diseases might turn into life-long debilitation. They can strike every one of the body's systems: digestive, circulatory, psychiatric, cardiac, pulmonary, neurological, etc. Tick-borne diseases are often misdiagnosed as ALS, MS, Chronic Fatigue, Fibromyalgia, psychiatric and many other disorders. Many people suffer with an "unknown disease" for years before they discover that they are victims of tick-borne disease. ;Because there is much conflicting information surrounding Lyme and tick-borne diseases, the Empire State Lyme Disease Association urges everyone to become familiar with prevention, symptoms, the kinds of medical help available, and ongoing support structures. More information can be found here within www.EmpireStateLymeDiseaseAssociation.org 

Specifically go to: 


Link below to purchase award winning film documentary Under Our Skin: www.amazon.com/gp/product/B004I0H71I?ie=UTF8&tag=santaclarit07-20&linkCode=as2&camp=1789&creative=390957&creativeASIN=B004I0H71I 


More info, Also see Yahoo Discussion Group


** CCSVI video by Stanford doctor covers the topic fairly broadly, talks about resolution of symptoms like brain fog, tinnitus etc in some of patients. http://csvi-ms.net/en/content/sir-presentation-prof-dake-available informative  


Click to listen to a disturbing tape of how the American Academy of Neurology (AAN) once advertised about treatment for Tick-Borne Diseases


*Important* Does Lyme affect the heart? Click Here for Lyme Carditis


*More information* LYME DISEASE * Symptoms, Misdiagnosis, Testing, Coinfections*


PAINT MAY LYME GREEN http://lymebites.com/ & also www.spirochicks.com


The Empire State Lyme Disease Association, Inc. is a nonprofit charitable organization incorporated in NYS and dedicated to education, prevention,  awareness advocacy, research, and patient support for tick-borne illnesses including Lyme disease.  Our goal is to prevent chronic tick-borne diseases, by education about prevention which includes crucial early diagnosis.  We offer patient support and we work for awareness of the need for a quality of health care that needs to be provided to victims of both early and later diagnosed tick-borne diseases. We are dedicated to helping and supporting people suffering from Lyme and associated tick-borne diseases.  Empire State is based in Manorville, NY and is active in local, state, and national issues.  There is a desperate need for more awareness of the potential dangers of tick-borne illnesses.


Disclaimer: Information on this site is offered to help further awareness of Lyme and associated diseases.  We hope that the information will help you to become more familiar with the subject of tick borne illnesses, but the information on this web site should not be used as a substitute for medical advice, diagnosis, or treatment.  The information on this web site does not represent endorsement or an official position of Empire State Lyme Disease Association, Inc. or any of its directors, officers, advisors or members.  Please consult a physician for all medical advice, including advice on testing, treatment and care of a patient who has or may have Lyme or any associated tick borne diseases.

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