EMPIRE STATE LYME DISEASE ASSOCIATION

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NYS Doctors are Protected 

OPMC Reform

Signed by Gov. Paterson 2008

 

Empire State Lyme Informational Brochures (free)

 

Tick- Info Plus (Download 97 page Tick Management free)

 

Lyme and Tick-

Borne Disease Info

· The Beginning

· Rashes

· Early Detection 

· Testing

· Symptoms

· Additional Symptoms

· Co-infections

· Late stage Infection

· Antibiotics

· Treatment

· Herxheimer Reaction

· Mechanism of Action

· Survival Tactics

· The Bad News 

· Conclusion

· Good News

· Prevention

· Alternative Treatments

· Lyme Disease Politics

· Disclaimer

 

**PREVENTION**

 

Lyme tests are not accurate-2005 John Hopkins study

 

Articles on the Persistence and Virulence of Lyme

by Miklossy, Luft, Barthold,  others

 

*Support Group Meetings*

 

Empire State Lyme en Espaņol

 

Great Educational Presentation for School Children 

 

LYME BOOKS

and Books on 
Tick-Borne Diseases
plus

FREE: THE THIRD

GREAT PLAGUE

 

**Empire State Lyme Disease Association ~ Our Yahoo Discussion Group**

 

Children

Autism and Lyme Disease

Children

LYME & Pregnancy by John Drulle, MD

 

Misdiagnosis

Alzheimer's and Lyme Disease

 

LYME BORRELIOSIS and MULTIPLE SCLEROSIS

 

Worm Parasites, FILARIASIS Nematodes in ticks?

Nematode Spirochete Farmers

NEMATODE-BACTERIA SYMBIOSIS

10 Questions For Scientists

 

Heart Disease & Lyme Disease & Lyme Carditis
 

Antibiotics

Antibiotic

Resistance

 

ILADS TIPS TO AVOID CHRONIC LYME DISEASE

 

**US Senator Chuck Schumer, NY, on the
Board of Empire State 
Lyme Disease Association
**

 

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Freedom of Information Law Requests

Federal Health Reform

Implementation Timeline

 

Special Thanks

 

In Memory

of Keith Romaine 

 

 
 
 

** 2011 Lyme Meeting & Event Reminders **

More info, please see: Support Group Meetings

**

Support meetings are free & open to the public.  We provide information on topics of Lyme and tick-borne diseases and we address other areas of concern to participants.

 

 

EMPIRE STATE LYME DISEASE ASSOCIATION INC

Riverhead Chapter  Support Group Meeting

DATE: Saturday Aug 27, 2011 Aug 27, 2011 

TIME: 1-2:30 PM  

is canceled due to Hurricane Irene.  

Future dates to be announced.

Stay Safe!

Info 631-878-6657 or EmpireStateLyme@aol.com

For more Info and to Download printable flyers:

Empire State Lyme Disease Association

Capital Region Chapter

Please note that there will be no meeting for August, 2011 but the Capital Region Chapter will resume meetings in September - Please Stay Tuned!!

For more information, please contact bjmeslda@yahoo.com.

For more Information and to Download printable flyers

Central New York Chapter

Empire State Lyme Disease Assocaition, inc

Support Group Meetings
For more information please call Kristin at 315-200-6541

or email LymeCNY@gmail.com

Adirondack Lyme Disease Foundation  

Any Questions, please contact 

info@AdirondackLymeDiseaseFoundation.com

or Linda K at: 518-581-8170

For more info about regular support group meetings, 

please email lmcallister@nycap.rr.com

The Fingerlakes Region

Rochester Lyme Disease Support Group

Empire State Lyme Disease Foundation

Support Meetings on the Third Sunday of Every Month

From 2:00 to 4:00 PM 

From 2:00 to 4:00 PM 

At the Farmington Town Hall 

1000 County Road 8, Farmington NY 14425

Email Fingerlakeslymegroup@yahoo.com

Call 585-924-3558

 

More info, please see: Support Group Meetings

 

Unless otherwise specified, meeting are geared to answer questions about Lyme and tick-borne diseases and to provide education pertaining to prevention and management of these diseases. 

**

Ticks Can Be Active All Year Round - Caution Urged 

The Empire State Lyme Disease Association urges everyone to be on guard throughout the year. Ticks may be active if the temperature is warm, even in the middle of the winter. The ticks can even become more active in the cooler and damper weather, and can be found in leaves, on trees, and in tall grasses or other leafy areas. ESLDA recommends using caution when moving firewood, walking in the woods or fields, and be especially vigilant in checking children who have been playing outdoors. 

The use of a commercial tick repellent, wearing light colored clothing, and avoiding leafy or tall grassy areas is recommended for out-door activities. Even if pets are vaccinated, they can bring ticks into the house. Check yourself, check your family members, and check your pets for ticks. SEE PREVENTION

Tick-borne diseases, rampant in New York, can be highly complex, and difficult to diagnose and treat. For instance, blood tests for Lyme can return false negative results, leading doctors and patients down long, expensive, and incorrect diagnostic paths. See Testing is inaccurate 

We need more doctors to have extensive experience in the diagnosis and treatment of tick-borne diseases, in all stages and especially advanced stages. New York has a number of outstanding doctors who are helping many patients afflicted with Lyme and other tick-borne diseases. If diagnosed and treated early, patients can recover.  If left undiagnosed, or improperly or insufficiently treated, Lyme and tick-borne diseases might turn into life-long debilitation. They can strike every one of the body's systems: digestive, circulatory, psychiatric, cardiac, pulmonary, neurological, etc.    

Tick-borne diseases are often misdiagnosed as ALS, MS, Chronic Fatigue, Fibromyalgia, psychiatric and many other disorders. Many people suffer with an "unknown disease" for years before they discover that they are victims of tick-borne disease.   Because there is much conflicting information surrounding Lyme and tick-borne diseases, the Empire State Lyme Disease Association urges everyone to become familiar with prevention, symptoms, the kinds of medical help available, and ongoing support structures. Online information can be found here at www.EmpireStateLymeDiseaseAssociation.org 

Specifically go to:

**

Overview article "Spring Is Here, Need To Be Aware Of Ticks" by Chris Fisk

**

More info, Also See: Yahoo Discussion Group

 

**

Under Our Skin the award winning Lyme disease documentary is now available: Amazon On Demand - rent at $3.99 for 48 hrs (or buy $14.99)  

Link: http://www.amazon.com/gp/product/B004I0H71I?ie=UTF8&tag=santaclarit07-20&

linkCode=as2&camp=1789&creative=390957&creativeASIN=B004I0H71I

PBS is broadcasting the film in May, Lyme disease awareness month.

**

http://csvi-ms.net/en/content/sir-presentation-prof-dake-available informative video on CCSVI by Stanford doc, covers the topic fairly broadly, talks about resolution of symptoms like brain fog, tinnitus etc in some of patients.

 **

**

*Important* Can Lyme disease affect the heart? Lyme Carditis

 Click below for more information

* LYME DISEASE * Symptoms, Misdiagnosis, Testing, Coinfections

**

PAINT MAY LYME GREEN http://lymebites.com/ & also www.spirochicks.com

The Empire State Lyme Disease Association, Inc. is a nonprofit charitable organization incorporated in NYS and dedicated to education, prevention,  awareness advocacy, research, and patient support for tick-borne illnesses including Lyme disease.  Our goal is to prevent chronic tick-borne diseases, by education about prevention which includes crucial early diagnosis.  We offer patient support and we work for awareness of the need for a quality of health care that needs to be provided to victims of both early and later diagnosed tick-borne diseases. We are dedicated to helping and supporting people suffering from Lyme and associated tick-borne diseases.  Empire State is based in Manorville, NY and is active in local, state, and national issues.  There is a desperate need for more awareness of the potential dangers of tick-borne illnesses.

Disclaimer: Information on this site is offered to help further awareness of Lyme and associated diseases.  We hope that the information will help you to become more familiar with the subject of tick borne illnesses, but the information on this web site should not be used as a substitute for medical advice, diagnosis, or treatment.  The information on this web site does not represent endorsement or an official position of Empire State Lyme Disease Association, Inc. or any of its directors, officers, advisors or members.  Please consult a physician for all medical advice, including advice on testing, treatment and care of a patient who has or may have Lyme or any associated tick borne diseases.

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